Test results are back and for the most part they are pretty good! The V/Q scan came back totally negative and he doesn't have any blood clots, so this was the first part of the good news! The echo showed his ejection fraction to be at 65% which was up from last week so that is wonderful news! Something that they noticed last week that they are going to keep an eye on though is that his right side of the heart is a little stiff which is not uncommon early on in heart transplant patients, sometimes it just takes awhile for it to get revvvin... if you get my drift. But after a certain point it should be up and beating as well as the other side. Last weeks echo showed it was really stiff and yesterdays echo showed the same thing, so they ordered a right heart cath to be done at the same time as his biopsy on Thursday to measure the pressures of that right side just to make sure that it is doing what it is supposed to be doing and is just sleepy and not failing! So prayers needed for that one!
Also, David is being a real booger about one of his meds, he pretty much refuses to take one of them. It is a medicine that he either has to suck on or swish in his mouth and then swallow to prevent an oral infection and he says the medicine is disgusting, which I am sure it is, and he flat out refuses to take it. The doctor told him yesterday how bad it would be for him if he got an infection but he just doesn't care, there is only so much I can do here about this. He isn't 4 any more and as much as I would like to hold him down and make him take it I just can't:) So I would really appreciate some prayers in that regard as well!!
We have spent a very relaxing day today after yesterday, both of us are in our lounging about clothes, Dave rented an in room movie and I have played on the computer and done some reading. It has been quite nice today, I wish it was a bit warmer I would step outside for a bit and work on my sun tan!! He wants to go out and about tomorrow and see some sights and do some errands, plus he has a list for the grocery store, so it is probably good we had a day of rest!
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Oh I remember that med!! I have a story for you! God bless, Sarah
ReplyDeleteYes Sarah it is THAT one that you are thinking about! He is REFUSING to take it!! What the heck!
ReplyDeleteJust Facebooked ya and thought I'd check the blog before I laid ma head down on my pillow. Tell David that I said the meds are there for a reason. The doctors wouldn't have just given them to you for the sake of it. I was taking an oral medication for my mouth called Mycelex (not sure if thats spelt correctly) Had to take it three times a day. They do certain flavors I think. I had a marshmallow type one I think. Ask the Stanford guys about that. It has been nearly three years since I had my heart transplant so they may well have found something that works better which he is currently taking. Even so they've been prescribed to him for a reason. The one thing the Stanford team would go on about is "make sure you keep taking ALL your medication". They can tell him a few stories about people who decided not to. I'm pretty sure they would make him start back up again.
ReplyDeleteMuch Love,
English Joe
~X~
David, Take the stupid medicine...for all the people that love you.
ReplyDeleteDavid take the damn med... it tastes bad, it sucks, but you have a ONCE in a LIFETIME chance and you need to protect it with every fiber of your being... im sure it tastes horrible... working in the hospital im pretty sure i know what it is... but find something you can wash it down with after, or idk maybe do it THEN brush your teeth something... people have and of course we are continuing to pray our hearts out for you, just protect this gift you were given...
ReplyDelete*appologizes for the frank words, and steps off the soap box....
cassie
David, please don't prolong the process by allowing yourself to get an infection...the kids want David to come out and play! Please take the meds. Please don't get an infection. We're praying your days go fast, Buddy. We loe you tons...donna
ReplyDeleteThat was we LOVE you tons....sorry
ReplyDeleteListen to everyone who has written on this post Dave. You may have gone through the transplant physically but believe me your mum and everyone close to you who love you feel like they have experienced it for you too. You do everything the doctors say the quicker you'll be out and back to normal. Stay strong Old Boi. Ya mum has added my Skype name and I think I found her today and out a request in myself. I'm here if you ever want to speak to someone who's walked a similar path mate ok. Once you're out and free you'll appreciate life even better and greater than you did before. It will be worth it trust me on that one.
ReplyDeleteEnglish Joe
~X~
David,
ReplyDeletePlease remember the family that gave you a part of their loved one and the duty and honor you have to protect that heart in every way possible and if that means you have to take nasty medicine then you do it. I'm sure there are hundreds of people on the transplant list and their families who are praying for the very chance you have been given. Please don't get discouraged and give up because it all seems like too much. I think you're on the downhill part of your journey. Hang in there and take your medicine!!
PS Don't be mad at your mom for telling the world on you. As a mom, I would do the same thing. She almost lost you, loves you with all her heart, worries about you every second and doesn't want you taking any chances with your health.
Well I popped in today to see that smiling face with the heart. My heart fills with happiness that you and your family has come so far. As my daugter says "he's hot!!" Then I read that you arent linking one of your meds. Well you might not have thought about this, you have no choice. You need to take it to make sure you stay healthy and keeps you healthy because your gonna need all that strenght beating off 5 girls in Highland Indiana who think you are "adorable" Believe me they are 17 and are worse then the energizer bunnys. So David your gunna need all your strenght to run and run fast. You have become somewhat of a celeb here. So no matter how bad that stuff taste like i am sure it is going to be alot more pleasant then being cornered in a room with 5 17yr olds... *L* its not pretty!!
ReplyDeleteSeriously from a mom, no matter how bad it taste take it. Alot of people are saying alot of prays for you and for yourself and your family that have long hard nites thinking about you, you owe it to them and yourself!!!
Stay strong sweetie!!!
The Case Family, Highland Indiana
I'll whoop him into shape this weekend, don't worry. --doug
ReplyDelete